I have two young children aged 9 & 6 who are more like carers to me, and I want to see them and myself living a normal life....without carers & being able to work!.
This would mean the world for me to be seizure free and without my children waiting for the next seizure to happen. I am in desperate need of help for this to go ahead as soon as possible, whilst they are still young.
My one & only Dream is to be seizure free. Please help!.
Originally a cure was only possible in America. Now there is a new hope, with a new procedure called Stereotactic Radiofrequency Thermocoagulation, which is being carried out at the HH Centre in Japan, but costs approx £10,000.
To help please visit my donate page on this website. Thank you.
In America, surgeons have begun carrying out keyhole laser brain surgery for patients with Leanne's condition.
Although it is not risk free, early results show that it can be safer than open brain surgery. Patients with Leanne's condition have also reported some success, with seizures becoming less frequent or sometimes stopping altogether.
Leanne has sent scans of her brain to the Barrow Neurological Institute in Phoenix, and has been told that she could be a good candidate for surgery. Now though she needs to raise £95,000 to pay for the operation. She and her family begun fund raising, raising almost £8000 through yard and car boot sales and other fund raising Events . They have a long way to go to bring a flight and an operation within reach.
After years of trying to raise enough Money things took a surprising turn, after reading an article about a HH Centre in Japan...
To read the full story click here or go to the donate section on this website.
1 in every 200,000 people get this type of tumour (Hypothalamic Hamartoma), and most are in the USA where they are doing this procedure and get most of it done on Obamacare. Unfortunately for Leanne she needs to raise all this herself. as due to her being an individual, the hhugs charity uk cannot help her.
Leanne Bowers/Lyon a mother from Northampton is trying to raise £10,000 to have treatment in Japan for a rare brain disorder.
Leanne Lyon suffers from seizures, black-outs, and sometimes memory loss.
It is caused by a rare non-cancerous brain tumour called a Hypothalamic Hamartoma, which usually occurs in an area of the brain that produces hormones.
Just 1 in 200,000 people are believed to have the condition.
In just one day, Leanne can have tens of seizures and she is desperate to improve her quality of life. Doctors at the John Radcliffe Hospital in Oxford have told Leanne that although her tumour is small, just 6mm by 6mm, it is deep inside her brain.
This makes it too dangerous to remove the tumour using open brain surgery.