Radio Northampton Interview

Radio Northampton asked if I would like go in for an interview about Hypothalamic Hamatoma and my story, plus our Abseiling challenge this month. I had a wonderful interview with John Griff. A big thank you to Radio Northampton and John Griff for having me on his show. Take a look at the photo (opposite) and the Radio interview is in the radio interview section at the bottom right hand side of this page.

Astonishing News - Japan 

We now have the video from the tv show Astonishing News on our website, to view it please go to the Gallery section, or click here.

2018 New Challenge 

We are looking forward another busy year of raising Money, this will include Abseiling down the Express Lift On Saturday 19th of May between 10-11am, and my children will be taking part in the Colour Rush on July 22nd.  More information, news  and photos as we have it. 


Good causes and Fun Runs

We are looking forward to taking part in these great event and hopefully raising a lot of money for great causes, we'll bring you more information and photos closer to the events.

Abington Park 5k Walk

Tony's 5k Walk

Tony Welford who today walked 5k, is on cloud nine at the moment, and I think he surprised himself. And I am very very proud of him.

I cannot say how much he's raised, but he thinks about the £500 mark. I will update once sure how much got raised.

Jeremey Kyle Show 2016

Video update

The video of the Jeremy Kyle Emergency Room is now on our video page, please check it out.

May Fair

13th May

Sat 12:00 · Duston Eldean Primary School · Northampton

Abington Park 5k Walk

21st-22nd May

a challenging 5k Walk after Tony's two new knees recently, we'll need all of your support..

5k Colour Fun Run Abington Park

23rd July

This colourful and fun event takes place at the local park, we are really looking forward to taking part.. there will be lots of mess and lots of photos, Please help and donate to our charity for these events.

Astonishing News - Japan

Thursday 8th September

This Thursday the Japenese tv crew will be returning to film even more footage for the show that will be going out in Japan... it's going to be a busy day. I was interviewed by the lovely Hanako Kuyama, for more information check out my facebook page.

Jeremey Kyle Show 2016

Thursday 1st September

On the wednesday 31st August I am being picked up by the Jeremy Kyle Emergency Room to record on the 1st September Thursday. There will a be doctor in on the Thursday who knows about Hypothalamic Hamartoma. More information to follow...

Real Life Stories - Japan

Friday 26th Aug

This Friday we have a Japenese tv crew coming to video for 5 hours. This is for a 13 minute drama programme called Astonishing Stories, that will only go out in Japan. Check out our facebook page for the full story. (live stream from our facebook page is shown below)

Eldean May Fair Update

Saturday 14th May

On March 26th Epilepsy Awareness Day we raised £797.50 and yesterday £140 at Eldeans May Fair. But, we still need your help to raise the amount so desperately needed, click here to help by donating


May Fair

Saturday 14th May

I will be holding a stall at Eldean Primary School's open day in May to help raise money towards my rare condition called Hypothalamic Hamartoma, as the NHS will not fund for this. Plus we desperately need to raise awareness of this condition which is not heard of enough in the UK. Why not come along and join in the fun


5k Family Fun Run 2015

Money raised

Great news, we managed to raise £797 during our family fun run ... we'd like to thank everyone who helped make this possible, we hope we can count on everyones support for future events.


On the Radio

My first two radio interviews are now available to listen to, check them out at the bottom of the social media section (the right of this post)


5k Family Fun Run

Saturday 26th March

Myself and Children plus Carer will be doing a Family Fun Run/Walk on Saturday 26th March at Abington Park, Epilepsy Awareness Day, starting at 11am to help raise money toward's my rare cause of Hypothalamic Hamartoma. If those who have been kind enough to sponsor us wish to come along and watch, we will be starting at the entrance by the swings.


Herald and Post

Keep a look out for our new flyer in your Local Herald, along with a chance to enter our Prize Draw. 


Prize Draw Entry

We are pleased to announce that we will be having a prize draw for everyone who donates to out Go get funding page (click on the donate button to start donating). Donate to Enter and we'll be contacting the lucky person or persons when the draw results are announcd. GOOD LUCK


Abington Street Fundraising

We had a wonderful day on Abington street raising Money and awareness, thanks to everyone for their support and donations.


Blacklight Run

We done the Blacklight Run, Team: Glowing for HH on the 7th March and raised £433.00 for  Hypothalamic Hamartomas, A Big thank you to everyone who helps and supported us, to find out the full story please click here



May Fayre HH Awareness

On Saturday the 9th May, Denise Bull was kind enough to let me have a stall at Duston Eldean Primary School, in hope of raising money for my "HH" as I am an individual, and also try and make the condition aware of. We sold our items at 50p and raised £45.00,  It was a Wonderful day and we met lots of amazing people.  To Read to full story click here


Thanks again for everyones support, please like and share my story and help me raise the money needed. You can donate as little or as much as you can affort, every pound will make a huge difference, check out The Go Get funding link here on this page


More News and information about up and coming events that i will be running, so remember to keep checking back here for updates.

Useful Links

I hope this website will answer some of your questions and help raise awareness  of Hypothalamic Hamartomas. Please check out these link below for more information.  

Social Media

More social media links coming as we get them set up. Until then please Like, Share and Follow us on Facebook.


Click on Magazine image to download the pdf


Real People Magazine

Download a pdf of the latest magazine atricle... of course go out and buy the magazine as well


The Herald & Post

Download a pdf of the latest Herald & Post with my article

in it.



Click on Herald & Post image to download the pdf


Radio Interview

More radio news coming soon, we should have our latest interview in a few days.

Radio Interview One - BBC Radio
00:00 / 00:00
Radio Interview Two - BBC Radio
00:00 / 00:00


Click here to read the Sun Newspaper Article or download the pdf


Radio Northampton Interview - Leanne and John Griff
00:00 / 00:00

Past News and Events

Team: Glowing for "HH" Blacklight Sponsored Run/Walk towards my Ablation of HH

7 March at 15:00 The Saints, Egar Mobbs Way, Northampton. NN5 5JT 


On Saturday March 7th myself and a few friends, plus friends of friends, will be joining the Blacklight run Team: Glowing for "HH" in hope of raising money towards my ablation in America. 

If anyone wishes to join in the fun, as well as helping us towards this going ahead.  But don't forget to sign up on the Blacklight Run web site and look for Team: Glowing for "HH" 

Less than eight week to go, so come on...... you know you want too


Keep up to date with how things are going, with event and fundraising news by following me on Facebook.  Don't forget to Like and share our Facebook page.  You can view it here or click on the Facebook icon at the top of the website.  Thank you.

Giving Hope

Getting Answers

Hypothalamic Hamartoma





Copyright Leannes Brain Tumour Fund/Appeal 2018

Designed by Kall Kwik Northampton

  • Facebook Classic
  • Wix Twitter page
  • Instagram App Icon
  • YouTube Classic